Spinal Muscular Atrophy – Canada News

Alberta covering expensive SMA treatment for Fairview toddler ‘Mighty Max’

February 22, 2021 Canuck Alberta Government, Canada, Canada Zolgensma, Health, Max Sych, Mighty Max, Science, SMA, SMA Treatment, Spinal Muscular Atrophy, Spinal Muscular Atrophy Type 2, spinraza, zolgensma, Zolgensma coverage

An Alberta family is breathing a sigh or relief, knowing their two-year-old son can move forward with getting treatment for

GTA family fundraising to get life-saving drug for twins

February 20, 2021 Canuck GoFundMe, Health, Health Canada, life-saving drug, Online Fundraiser, Ontario, SMA, Spinal Muscular Atrophy, spinraza, zolgensma

An Ontario family is hoping an online fundraiser will help them afford a life-saving new drug for their twin toddlers.

Alberta children with spinal muscular atrophy eligible for interim access to Zolgensma

January 27, 2021 Canuck Access To Prescription Drug, Alberta Drug Access, Alberta health, Alberta health minister, Alberta politics, Health, Novartis Pharmaceuticals Canada Inc., rare diseases, rare drugs, Spinal Muscular Atrophy, tyler shandro, zolgensma

Health Minister Tyler Shandro announced Alberta is working with Novartis Pharmaceuticals Canada Inc. to provide interim access to Zolgensma for